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  1. #1
    Join Date
    Nov 2006
    Location
    Rockhampton
    Age
    62
    Posts
    2,236

    Default Mitral valve reguritation and Hypertrophic Cardiomyopathy

    Further issues with the dicky ticker, I have been made aware of these problems since I had the supra ventricular tachycardia (SVT) episode that I could't revert back to normal rhythm back in 2013, https://www.woodworkforums.com/f136/living-supra-ventricular-tachychardia-svt-179168 the ambos got it back to normal at the time but then took me up to the ED for further probing, after a good probing by various interested doctor types the probing suggested all was not good as it should be, words like murmer and Wolf Parkinson White (WPW) syndrome mentioned a fair bit, so an appointment in the cardiology dept and a echocardiogram revealed I have a mitral valve (MV) leak, not too bad but we need to monitor it on a yearly basis, OK, I'll go with that, meantime I have no symptons, not overweight, non smoker/drinker, active, not out of breath, so plod on as per normal.

    The 2014 echo revealed the leak to be worse so I have an appointment with the heart specialist at The Prince Charles Hospital in Bris for a chat about the MV, he is thinking that a repair is a good option for me and even better if he can do it as keyhole surgery as opposed to thru the sternum, also talks about further ablation work with regard to heart rhythm, sounds good to me but veins have to be clear, so an angiogram later shows all clear, no blockages despite my preference for butter and a high cholesterol number.

    A few false starts for an operation date in 2015 as I need further tests required before the op, tests being an MRI and echo, never had an MRI before so will be interesting, so off to the TPCH on the 4th this month for admission, with Dire Straits in my ears I nod off in the MRI, woken by breathe in and hold instructions , I also have visits from the head anesthetist and his offsider, both tell me I am also having a transesophageal echocardiogram (TOE) this gives a very clear picture of the MV, it is at this point a decision is made whether I am operated on or not, I am first inline for theatre on Saturday morn, I remember being in theatre and having sticky dots and wires attached, seeing the anesthetists and hearing some instructions then waking up and thinking feels like I've had a damn good sleep! the TOE reveals that the MV is leaking but still not bad enough to be operated on. The TOE gives me a sore throat and I have a headache. I am also to start on some meds which are hoped will ease the workload on the MV, one lowers my blood pressure which is not high anyway but they want to see it at around 100 to 110 and the other to help the Hypertrophic Cardiomyopathy, the what I think! to you and me this is abnormal heart muscle growth, I ask a few questions, seems that the leak is causing my heart to work harder than it should be and thus the heart compensates by building muscle just like a body builder builds muscle, Dr Google also suggests genetics are involved as well, this is not a good thing as eventually the heart will simply be too stiff to pump enough blood and there's your heart attack. This thickening seems to be another reason that I didn't have the MV repaired at the time as there was concern about my heart not handling the operation. Not sure why at this point.

    But they are not finished with me yet! Further discussions reveal I am to do a stress echo, late Tuesday I get to go for a fast walk on a treadmill, a resting echo first then the walk, I am instructed to go for as long as I can with each three minutes getting faster, I am nearly running, I go for ten minutes, back onto the bed with more breathe and hold instructions, not easy when your breathing heavy, but the echo team are happy! the stress echo gives a comparison between an idle and working heart. I spend the next two days having the vitals monitored just to see how I am handling the meds, I do feel a bit odd at times, a bit light headed but not too bad.
    I flew home last Friday with instruction to return on the 14th of next month, I am not to take up marathon running but just do as normal, I am also to up the strength of the meds within the month to see if the heart muscle thing can be resolved enough, will have to see what happens.....




    Pete

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  3. #2
    Join Date
    Jul 2009
    Location
    inverloch
    Posts
    472

    Default

    Good luck Pjt. Hope everything goes well.

  4. #3
    Join Date
    Feb 2009
    Location
    moonbi nsw Aus
    Age
    69
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    2,065

    Default

    Pete your narrative sounds like you are Specialist. It sounds like you have had some very good brains around you to work out you situation and then giving you decisions to help you go forward. The tyranny of distance comes into play with you having to go to Bris to get looked at.
    Hang in there and all the best
    Just do it!

    Kind regards Rod

  5. #4
    Join Date
    Jun 2005
    Location
    Helensburgh
    Posts
    7,696

    Default

    Don't have open chest surgery if you can possibly avoid it, I had it to remove a mass in my chest and never again and I have since suggested to my surgeon that he should have it for the experience and he couldn't see the humour in that idea. I have had a very high heart rate since the op and possibly before as well but in hospital I had over 180 for about 24 hours which got them a bit excited. It was diagnosed some months later as Sinus Tachycardia and I am on drugs to control it but the breathlessness and lack of physical stamina is driving me nuts as I can't do anything.
    CHRIS

  6. #5
    Join Date
    Feb 2003
    Location
    back in Alberta for a while
    Age
    68
    Posts
    12,006

    Default

    Pete

    good luck with the ticker.

    It sounds as though the specialists are having fun investigating the possibilities and options which is good.
    regards from Alberta, Canada

    ian

  7. #6
    Join Date
    Nov 2006
    Location
    Rockhampton
    Age
    62
    Posts
    2,236

    Default

    Yep, certainly avoid the opening up if possible, my arteries are all clear so that means the keyhole surgery for me is the preferred way forward, from what I understand if my MV can't be repaired in theatre then it will be the full on open heart op and a real possibility of replacing my MV with a mechanical valve, I'd prefer not to click click click but the alternative is no fun either.

    All the other beds in the ward (3) were occupied with patients that had been opened up, it is surprising how quick they get them up and moving to aid in the recovery process, the physiotherapists also give you a breathing gadget to help re-inflate your lungs, when she first gave it to me to have a practice I moved the piston all the way to the top, (non smoker I guess) she said you won't do so well after the op, will have to wait and see




    Pete

  8. #7
    Join Date
    Nov 2007
    Location
    Dundowran Beach
    Age
    76
    Posts
    19,922

    Post

    A mixture of news there pjt.

    My wife wad to have what you have had done in order to find what was causing her heart problems.

    Turns out she had a hole in the heart. Not uncommon but the symptoms were getting progressively worse
    Also found an artery coming out of the back instead of the side of her heart. This artery also had a kink.

    An Amplatzer device was used to seal the hole -inserted via the femoral artery so no chest opening.

    Arhythmia was a constant worry for her before the op and for sometime after this has subsided and is held in
    check by medication.

    The option of an ablation was considered but after consulting the specialist for that and questioning him at
    length that option was rejected.

    Ablations don't always work!! A young lad up the road from us had an ablation and he is no better off. Death is
    one side effect of an ablation gone wrong.

    Consider the option of the ablation very seriously before diving in.

    Good luck witgh it all!!!

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