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  1. #16
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    Feb 2006
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    Perth
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    Here's hoping for steady improvement all round.

    Quote Originally Posted by sacc51 View Post
    . . . . still plenty of bubbles thanks to a small hole left by the Surgeon. .
    Reminds me of when I had my second lymph node biopsy taken from between heart and lungs.
    The docs wanted me to get up and walking asap to help get rid of the aesthetic and I was glad to do that even though it meant being disconnected from the pain stop machine.
    The other reason was the other patient in the room who snored and blew bubbles all night.
    Every now and then he'd stop breathing and some sort of machine would kick in and restart him.

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  3. #17
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    Feb 2015
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    Oz
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    Managed to sleep on my side last night, got so sick and tired of lying on my back on the banana bed. sooo uncomfortable. How anyone can sleep on their back is beyond me. Still wheezing and the pain this morning was pretty intense so I had my meds and used the puffer, that improved it heaps. Soon as I'm able I might start doing underwater laps again and try to improve lung function. Probably never get back to 100%, but the function and capacity tests certainly proved underwater lapping is the way to go, can't swim on top anyway as the PsA has removed any chance of ever being able to do that again. I've always been more comfortable swimming underwater anyway, no idea why.

  4. #18
    Join Date
    Jan 2011
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    Far West Wimmera
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    63
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    I've still got a big hook screwed into the ceiling above the bed for a strap so I could lift myself with my right arm. The incision was under my left shoulder so that arm was not much good.

    Dean

  5. #19
    Join Date
    Nov 2005
    Location
    Darkest NSW
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    3,197

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    Quote Originally Posted by sacc51 View Post
    I've always been more comfortable swimming underwater anyway, no idea why.
    Turns out that you are , in fact, a penguin

    Seriously - I hope that your condition improves rapidly, and I'm sure you'll be back up to speed in no time. Just take it easy, and let things mend at their own pace.

  6. #20
    Join Date
    Feb 2015
    Location
    Oz
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    Feeling much better after a week or so at home. Walking twice a day and can now walk at a normal pace all the way around the block. Also back in my workshop, I get carried away at times, yesterday I was shoving my lathe around to a new position in the workshop so a little breathless this morning. When I was released from hospital the PsA pain had almost gone, due mostly I think, to the pain meds I'm on and two weeks of doing absolutely nothing. I saw the Rheumatologist yesterday, he's hopeful that the PsA will improve now the tumour is gone, they are linked in some cases apparently. No such luck though, the PsA pain is slowly returning, mostly just in my forearms and a little in wrists and elbows; but, I'm doing as much as I can, comfortably, while I can.

  7. #21
    Join Date
    Jan 2011
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    Far West Wimmera
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    63
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    Good to hear Sacc. Not helped by being abused online hey?

    I did a lot of walking while still in the hospital from the 5th day. I was walking pretty good within a couple of days. Most of the walking was because I was bored stupid. I was about 10 years younger then. I still could not use my left arm for several weeks tho. Using my splitter last week made the scar ache.

    Dean

  8. #22
    Join Date
    Feb 2015
    Location
    Oz
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    615

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    No one abusing me, that was Big Shed attracting the ire of the lunchbox legend. Absolutely disgraceful, disagreeing with a legend!

    I gather you've had a Lobectomy, how much did they remove?

    Walking gets a little difficult after a while with crook hips, so I can do too much of that. I figure spending time in the shed pushing the lathe around into a better position and re-aranging the coollant system was pretty good exercise for today - made me puff a bit. might have to see if I can ride the MTB instead I think. Tomorrow I get to put all the bits back in the stand, more heavy breathing.

  9. #23
    Join Date
    Jan 2011
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    Far West Wimmera
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    63
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    Oops, my bad. I have also copped a bit from the same person.

    I gather you've had a Lobectomy, how much did they remove?
    I only had a biopsy, but it was a major op. One of the specialists told me it would probably be just keyhole surgery and nothing to worry about. Then I spoke to the surgeon. "I have to get both hands into the incision so I can operate the tool which takes the biopsy and staples the lung at the same time. The sample was taken, so I was told at the very bottom tip of the lung. I can feel the incision by putting my right hand over my left shoulder. I don't even think about what he had to do to get there. The op was booked for 9:00am Tuesday morning. I finally went in at 1:00pm after laying around on my bed in a corridor while waiting. That afternoon the specialist came in to my ward in High Dependancy with a face as long as it is possible to get. He was not optimistic at all. Some hours later he returned with the surgeon with big grins on both faces. At least I was going to live anyway.

    Monday morning to Friday evening, not a wink of sleep. 2 angry men had emergency ops in the only other private room in HD. Both died. They were both refusing to cooperate with staff. I was high as a kite the first time and could not work out what was going on. It was really weird. The second one held up my transfer to a normal ward and I was really glad to get out of there. The food was inedible. The only thing I ate from the hospital kitchen besides toast was a piece of chicken. All the rest went back untouched.

    I have sarcoidosis of the lungs. It seems to have settled down now, but I still have only 60-65% lung capacity. I am trying to improve my fitness, but it is an uphill battle when you don't have a lot of breath.

    Dean

  10. #24
    Join Date
    Feb 2003
    Location
    back in Alberta for a while
    Age
    68
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    12,006

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    Quote Originally Posted by sacc51 View Post
    Feeling much better after a week or so at home. Walking twice a day and can now walk at a normal pace all the way around the block. Also back in my workshop, I get carried away at times, yesterday I was shoving my lathe around to a new position in the workshop so a little breathless this morning. When I was released from hospital the PsA pain had almost gone, due mostly I think, to the pain meds I'm on and two weeks of doing absolutely nothing. I saw the Rheumatologist yesterday, he's hopeful that the PsA will improve now the tumour is gone, they are linked in some cases apparently. No such luck though, the PsA pain is slowly returning, mostly just in my forearms and a little in wrists and elbows; but, I'm doing as much as I can, comfortably, while I can.
    Quote Originally Posted by sacc51 View Post
    Walking gets a little difficult after a while with crook hips, so I can do too much of that. I figure spending time in the shed pushing the lathe around into a better position and re-aranging the coollant system was pretty good exercise for today - made me puff a bit. might have to see if I can ride the MTB instead I think. Tomorrow I get to put all the bits back in the stand, more heavy breathing.
    I'm really happy to read the above after your first few "I would be better off dead" posts.

    All the best for your continued recover and life extension.
    regards from Alberta, Canada

    ian

  11. #25
    Join Date
    May 2012
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    Woodstock (Cowra)
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    74
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    3,372

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    A positive mindset is a great healer, glad to see you powering on.
    The person who never made a mistake never made anything

    Cheers
    Ray

  12. #26
    Join Date
    Feb 2015
    Location
    Oz
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    615

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    Got the results of the second tumour the Doc found, benign, so I lost the middle lobe for nothing. I have 1/3 left of the right lung now so if I have to lose anymore lung I'll probably end up on oxygen 24/7.

    I don't know why some people are so worried about dying, sometimes living is the worse option, I don't have a problem with it: How would you like to live like poor old Christopher Reeve did for years, not my idea of living.

    One beneficial offshoot of these health problems I have is coming to terms with the briefness of life and the finality of death, we have to experience both and sometimes, as in Christopher Reeves case, the latter seems the better option.

    Hopefully, one day, our government will pass legislation in favour of voluntary euthanasia.

  13. #27
    Join Date
    May 2009
    Location
    Peoples Republic of Bryn
    Posts
    393

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    Quote Originally Posted by sacc51 View Post
    Got the results of the second tumour the Doc found, benign, so I lost the middle lobe for nothing. I have 1/3 left of the right lung now so if I have to lose anymore lung I'll probably end up on oxygen 24/7.

    I don't know why some people are so worried about dying, sometimes living is the worse option, I don't have a problem with it: How would you like to live like poor old Christopher Reeve did for years, not my idea of living.

    One beneficial offshoot of these health problems I have is coming to terms with the briefness of life and the finality of death, we have to experience both and sometimes, as in Christopher Reeves case, the latter seems the better option.

    Hopefully, one day, our government will pass legislation in favour of voluntary euthanasia.

    I have to agree with you, and I'm looking forwards to the day voluntary euthanasia is legal here, well overdue.

    When i was in the Spinal Unit with Paraplegia, we shared it with Quadriplegia patients, what a cruel way to live and inhumane way to live, when i was up and rolling around i use to sit there and turn magazine pages so they could read, remember they can't change tv channels, or dial the phone.

    quite a few of them found a way to end there suffering once out of hospital, by driving their electric chair into lakes and vehicles, or by sitting out in the cold to get sick.

    There has to be a better way than forcing people to do this.. living is a prison everytime you open your eyes.


    Before anyone jumps and rants, you couldn't imagine the frustration, physical pain and mental pain that these guys have to endure.


    but I'm glad to see you are improving, its a tough road but hopefully you see more improvement.

  14. #28
    Join Date
    Feb 2015
    Location
    Oz
    Posts
    615

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    I'm a firm believer in my life, my decision. I don't believe people need to be seriously or terminally ill for this right, some people just get sick of life. I can see absolutely nothing at all wrong with having the means at their disposal for a humane and painless death.

    I never saw him die, but my sisters ex husband came down with mesothelioma, his son was telling me how he suffered, he was absolutely terrified, stuck in a wheelchair with leads coming out of him, drugged up to the eyeballs and unable to move, if that's not torture???

    I think all these pro life bozos need to spend a bit of time in a paliative care ward, meet the patients and tell them why they are being made to suffer and then watch them die, I wonder how they would vote on the bill then???

  15. #29
    Join Date
    Feb 2015
    Location
    Oz
    Posts
    615

    Default Right to die or live, my life - my decision.

    I'm not ready to depart yet, I have tools to play with, things to do and places to see, a wife I'm not ready to say goodbye to. But when I'm ready, it should be my decision, not some over educated politician who has not lived a decent, normal life.

    I really get stoked up on this subject, it burns!

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