Restless Leg Syndrome [Archive]

macca2

23rd July 2008, 10:57 AM

BobL

23rd July 2008, 11:06 AM

Hi........who out there has RLS and what are you taking.
I have suffered from this for years and have tried many remedies, both natural and drugs.
I am currently taking Cabergoline which is a Parkinsons medication and works well for RLS.
The downside is that this has been taken off the market in the USA as it is thought to cause heart valve problems.
Anyone got any bright ideas.

Macca

I got it after I had shingles in 2004 but even though I think they are related the doctors are not convinced. I tried all the remedies but not Cabergoline. Eventually it went away sometime last year. But - just to keep my sleep in a ruinous state our old arthritic dog now gets me up 4-5 times a night.

Waldo

23rd July 2008, 11:24 AM

Taking? nothing.

But am I, as 1 example, forever in trouble for bouncing my leg at tea time? :yes:

Andy Mac

23rd July 2008, 05:15 PM

I get it sometimes at night, trying to get to sleep. I usually give up in disgust (or get kicked out :~), get up and do something till the wee hours... like drink wine, watch TV and go on the computer...when I nod off.:-

Cheers

Brendan1152

23rd July 2008, 08:11 PM

I take another Parkinson medication, 'Levodopa & Carbidopa' it is available in a generic brand called Kinson 100/25. Not sure what the name brand is though.

Works well for my RLS at quite low dosages and does not appear to have any side effects.

Cheers

Brendan

Toolin Around

23rd July 2008, 08:31 PM

Hi........who out there has RLS and what are you taking.
I have suffered from this for years and have tried many remedies, both natural and drugs.
I am currently taking Cabergoline which is a Parkinsons medication and works well for RLS.
The downside is that this has been taken off the market in the USA as it is thought to cause heart valve problems.
Anyone got any bright ideas.

Macca

FWIW

I've had it on and off for years; can be extremely annoying. For me the common denominator was lack of sleep. It only ever cropped up when I felt very very overly tired and or exhausted. And always went away after a good sleep. In fact I've always found it faded considerably when my head hit the pillow and I bagan to move towards sleep.

tea lady

24th July 2008, 12:14 AM

I had it a bit before my son was born and it got really bad after I had the baby. Although it didn't really bother me. My husband kept complaining that I was kicking him in the shins at night. It happened I think, just as I was going to sleep. He reconed I must hhave been dreaming of playing soccer. Anyway I took magnesium suppliments for a while. (That is all that the"natural" restless leg cures are, but cheaper ) Or you could take dolomite which is magnesium and calcium which doesn't hurt. Two bottles seemed to do it, one each night. Apparently magnesium is stored in your muscles, but if it is lacking in the diet the store in the body can run down and then it starts to be dragged out of the muscles causing them to shake. Thats the theory anyway.:rolleyes:

macca2

24th July 2008, 10:46 AM

Thanks Tealady, I might give the magnesium a go. Sounds better than the nasties the Docs want to give me.
Macca

wheelinround

24th July 2008, 11:42 AM

RLS physio said people get it for many reasons males mostly due to the pressure applied to the hip while carrying their wallet in the back pocket. Twists the hips during the day when sitting and walking if pants are tight.

My RLS isn't as bad as it used to be no longer driving 24/7 pumping heavy clutches and changing gears when I finally got to bed and dead to the world:doh: family reckond even the snoring sounded like engine brakes:o

smeds

24th July 2008, 02:52 PM

Hi there Macca2, i have suffered wit RLS for quite a few years now and it wasn't until i saw a sleep specialist when she prescribed a medication called Repreve or it's other name Ropinerol, i can tell you that since i have been on this medication i no longer suffer from the dreaded RLS.This stuff is great so if you are interested talk to you doctor about it. Works for me

macca2

24th July 2008, 04:55 PM

Hi Smeds, I have heard of Repreve and how good it is, but have been told that it is not on the PBS and is very expensive. Is this correct
Thanks
macca

prozac

24th July 2008, 10:59 PM

Or you could take dolomite which is magnesium and calcium which doesn't hurt. Two bottles seemed to do it, one each night. Apparently magnesium is stored in your muscles,...:rolleyes:

Tea Lady, I am thinking perhaps your mean one tablet a night surely?

prozac

MICKYG

25th July 2008, 12:12 PM

Macca

Do some research into Walnuts, they contain lots of goodies for all sorts of ailments. I am aware that they are high in magnesium which is good for the complaint you mention. They are excellent for cholestrol problems, and if you have had a heart attack they will stave off another. Dont take all I have said as gospel but do some looking into the magic of walnuts about 16 halves per day. You can buy them in bulk shelled from most supermarkets. May turn out to be a cheap alternative. There are people who are not able to eat them due to the quick upset tummy syndrome, so be aware.

Regards Mike:2tsup:

smeds

25th July 2008, 01:29 PM

Hi Macca, i can't really help you out with a non pbs price, try talking to your chemist or that online chemist wharehouse and see if they list a price on there, sorry i can't be of more help to you.

tea lady

25th July 2008, 11:23 PM

Tea Lady, I am thinking perhaps your mean one tablet a night surely?

prozac
:doh::rolleyes:

redcharger

3rd September 2008, 01:26 PM

Found this website on restless legs syndrome thought it may be interesting I never even knew it existing till I found it on the web one night

http://www.rls.org.au/

Whilst I have never been diagnosed I think I suffer from this from time to time, I too had shingles twice under 35.
Mike

Chris Parks

16th September 2008, 12:48 AM

My mum has had it for years, she is now 90. It has reached the stage where she is nearly bed bound for other reasons but has this insidious problem which drives her mad as she needs to get up and walk but can't. She has been on Madopar (sp?) another Parkinsons drug but I think it is losing its effect. She openly says she does not want to be on this earth because of the RLS. Her defense against it for a few years was alcohol and for someone who never drank more than a glass of win occassionaly this unusual until she told me why. Now she is so infirm that if she drank she could have another fall and she does not need that. Life can be so unkind.

prozac

16th September 2008, 01:14 AM

Very sorry to hear about your Mum Mini. I think we suffer too much when we see our parents in such torment.

tea lady

16th September 2008, 10:20 AM

Asked hubby if I still kick him in bed, and apparently I do.:C So obviously, ignor what I said before.:rolleyes:

Chris Parks

16th September 2008, 10:32 AM

Apparently it advances to very painful in som e cases and this is what has happened to my mother, though as she has other problems and is somewhat disorientated by pain relief drugs it has become difficult to seoerate where one starts and the other leaves off. I am never want to be where she is now.

David L

24th September 2008, 08:21 PM

I suffer from involentary muscle movement and the doctor recommended Magnesium& Calcium. Works for me. I believe it has also been used for RLS