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  1. #46
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    Dec 2013
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    Good sleep has only recently become appreciated as being of importance in T2D. Stress is a killer.
    Innovations are those useful things that, by dint of chance, manage to survive the stupidity and destructive tendencies inherent in human nature.

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  3. #47
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    Talking about sleep!

    Well I am already home from hospital and feeling pretty good despite virtually no sleep last night as the other patient in the ward (major chest surgery by the look of it poor bugger) was snoring and rasping and his Sleep Apnea machine was kicking in and making just enough noise to wake me me every time I just started to nod off.
    Every couple of hours the nurse was waking him to cough up stuff and he sounded like he was going to pass out so I was leaving room and doing slow bog laps of the ward just to get away from the sounds and to work of the anaesthetic. I estimated I did some 40 bog laps around the 40+ room ward.

    I mentioned the rubbing raw of of the inside of my lower lips in my previous bronchoscopy to the doctor before the surgery and this time there was no problem with that.

    This time they had me on a pain stop machine for a couple of hours after the surgery but that meant calling the nurse every time I wanted to do some bog laps so they disconnected me and gave me some tablets instead but right now all I have is a mild sore throat, so, much better all up than the previous bronchoscopy

  4. #48
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    Ironic that our well meaning health care professionals will wake you from a sound sleep to administer a sleeping pill isn't it? Happy to hear you're out.
    Innovations are those useful things that, by dint of chance, manage to survive the stupidity and destructive tendencies inherent in human nature.

  5. #49
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    Feb 2006
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    Perth
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    Quote Originally Posted by rob streeper View Post
    Ironic that our well meaning health care professionals will wake you from a sound sleep to administer a sleeping pill isn't it? Happy to hear you're out.
    I'm happy I'm out too.
    BTW I wasn't a sleeping pill, it was a pain killer in lieu of a self administered pain drip.

  6. #50
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    Oct 2013
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    Perth, Australia
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    Keep us posted mate, good to hear you're out and back home.

  7. #51
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    Had my 6 monthly PET scan today to check on how my sarcoidosis is going.

    If you note from the first post in this thread, this is the anniversary of my annual "tackling the rampant bougainvillaea on the top of the shed" which I tackled again last saturday.
    It was this pruning that left me feeling crappy and triggered a series of medical visits and tests that eventually led to my diagnosis.
    Anyway apart from the usual cuts and scratches from the
    bougainvillaea I felt much better after that pruning session than I did the same time last year.

    After the PET scan The radiologist came out and asked me a few questions like, how am I feeling (fine) and, how tired I feel.
    Having just had a full hours rest while the Radioactive sugar was preferentially soaked up in my over active bits, I felt quite rested.

    She seemed quite surprised that my lymph nodes are all "lighting up in the scans like Xmas tree lights", but I have no symptoms and feel well, and that 2 biopsies showed no lymphoma.
    She said I was one of the most interesting and unusual cases of sarcoidosis they have ever seen, whatever that means?
    Maybe inhabited by aliens???

    More blood tests this week and then an appointment with the specialist.

  8. #52
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    Cheers for the update! I hope the positive news continues [emoji846]

  9. #53
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    Canberra
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    Quote Originally Posted by BobL View Post
    Maybe inhabited by aliens???
    Expect a visit tonight.....

    tumblr_m7hu5lCup81rnejj9o1_500 (222x300).jpg

  10. #54
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    Dec 2011
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    SC, USA
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    Honestly - it sounds like the first round of this whole thing was dehydration and sweating out key minerals like sodium, potassium, magnesium, and others... That can leave you feeling exhausted and weak for weeks and longer until you replenish these minerals.

    Compound that with "low salt" diets where they recommend you restrict almost all mineral salts in an effort to "combat hypertension and high blood pressure"... And you have a perfect storm.

    So.. Do you keep up with daily vitamins, mineral supplements, vitamin B, D, and augment your diet with extra minerals in times of exertion like this?

  11. #55
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    Quote Originally Posted by truckjohn View Post
    Honestly - it sounds like the first round of this whole thing was dehydration and sweating out key minerals like sodium, potassium, magnesium, and others... That can leave you feeling exhausted and weak for weeks and longer until you replenish these minerals.
    I don't remember a lot of sweating, well no more than my daily 5 km walk with the dogs, and far less than I typically do when chainsaw milling. I had in fact done several days of chainsaw milling just a few weeks earlier which left me tired but no more than usual. What I was doing with the pruning was using muscles I don't normally use. I also had a flu bug which didn't help.

    Do you keep up with daily vitamins, mineral supplements, vitamin B, D, and augment your diet with extra minerals in times of exertion like this?
    If you knew what I ate you would understand why there is no need for me to take any supplements. My diet consists of lots of low carb vegetables (we spend ~$70 a week on vegetables), certain oils, meat, fish, eggs, nuts and diary. The only fruits I eat are berries and the odd pear. No alcohol (well maybe one drink every few months), no carbohydrates (sugar, cereals, bread, rice, pasta) and no biscuits, cookies or cake, except occasionally as treats on birthdays and holidays. We buy very little processed food and basically cook everything from scratch. I eat a lot of chilli and wide range of spices and spicy foods. I asked my specialist about taking extra vitamins and he said as my diet is one giant vitamin pill all I would end up doing is peeing them out. The reason for diet means I can control my diabetes without medication. I am not supposed to add salt to my food but I still add a bit from time to time.

  12. #56
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    I gather your diet is the no/low carb. high fat diet recommended by some diabetes groups. I tried that and found I would rather be dead I'm afraid, I'm very fond of food, particularly anything made from wheat.

    I also tried lots of other diets, gluten free, meat free, dairy free and a few others, these were for RA mostly. None of them made any difference anyway so I'm back to just eating whatever I like.

    My GP is happy with that as my sugars are well controlled anyway due to carb counting. 6.3 on my last blood test from memory, GP wasn't happy with that, said it was too low.

    I'm now on biologics for RA, none of the DMARDS: MTX, sulphasalazine,hydroxychloroqineand the like worked, so I started on cimzia, then actemra and now cosentyx, that leaves me with another two before the govt cuts me off. I suspect if the next biologic doesn't work the Rheumatologist will probably but me on an infusion of some sort.

    Lucky me, I'm only his second patient he's had where no meds work.

  13. #57
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    Quote Originally Posted by sacc51 View Post
    I gather your diet is the no/low carb. high fat diet recommended by some diabetes groups. I tried that and found I would rather be dead I'm afraid, I'm very fond of food, particularly anything made from wheat.
    Too much wheat ladened and naturally sweet food was probably why I got diabetes in the first place. I especially love bread/pasta/rice/potatoes and used to consume about half a loaf a day of fancy multigrain bread a day. I also like fruit and was eating about 5 pieces a day of high sugar fruit. Fortunately for me I found a range of other foods that are just as delicious but have less sugar.

    When I first went on the low carb diet I did increase the amount of fat this helps make you feel fuller but after doing that for about 9 months I moved to just not worrying about the amount of fat. Now if I want to have sausages or bacon or pork belly strips I just have them. I still avoid certain types of fats e.g. olive and coconut oil instead of canola.

    For breakfast I usually have a heap of stir fried veg (combos of spring onions, tomato, capsicum, chilli, leek, mushrooms, sprouts, free beans, spinach) and some protein (sausages/fish/eggs/cheese) - yes I would like a piece of toast with that but now that I have done it for 2 years I don't miss it that much. I still have the toast if we go out for breakfast.

    For lunch its either leftovers, salads with fish or cold meat, or soup. Not as convenient as a sandwich but then again being retired I am in no rush.

    We eat a lot of baked/casseroled vegetables for dinner, and except for summer the slow cooker gets used 3/4 times a week. Rice has be replaced by granulated cauliflower. Mashed potatoes with mashed cauli with parmesan cheese and cream - its delicious.
    For desert, home made yogurt, berries, various cheeses.
    I'm sort of just used to it all now and could go off all diabetes meds if I wanted to.

    The ongoing problem is serving size, its all too delicious and I keep going back for more!

  14. #58
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    Feb 2015
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    Oz
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    It's all in the individuals taste buds I think. I don't eat a lot of meat now for a couple of reasons: one because I don't particularly enjoy it anymore and two because I love animals and just don't like the idea of eating them.

    My diet consist largely of fruit, veges and wheat based foods with the occasional meat such as turkey mince, pork or sausages. I definitely eat too many biscuits, and cakes, chocolates and suchlike - always had a sweet tooth. Carb counting has meant I get pretty low sugar levels of around 6.5.

    Since I contracted RA I really don't give a rat's about my health anymore, I think the RA will kill me long before high blood pressure, high cholesterol or diabetes will.

    I do hate being overweight though - so uncomfortable, and as I can't exercise at all now I use the 5/2 method to keep the weight off.

    After I retired I looked forward to growing old disgracefully: I was going to surf everyday but diabetes put a stop to that, I was also going to compete in seniors bodybuilding events but OA put a stop to that. All that was left was to sail my canoes, work with my tools, ride my bicycle 20 klm a few times a week, lift some light weights and do sit ups and push ups everyday, same as I'd done all my life, then RA hit and put an end to pretty well everything. Some days I have trouble hitting the keyboard.

    I can't stay away from my tools though, I have bought lots of tools to help me out, power files, metal benders and the like and modified all my machinery by extending handles so I can tighten lathe chucks, pedestal drill tables and such. But even so, there is a price to pay: a few hours work in the shed leaves me no choice but to swallow handfuls of pain medications, cover my arms in wheat packs and lie around in the hammock for days on end until I recover, then, stupidly, repeat it all over again - some things you just can't let go. When I get to the point where I can't enjoy my tools anymore I don't think I'll want to stick around.

  15. #59
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    Perth
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    Had my appointment today with the specialist.

    The blood test results show less of an indication for sarcoidosis than the last two tests, but the PET scan shows an increasingly more active lymphatic system than last time.
    The good news is the activity has not spread. So they're sort of back to scratching their heads.
    No specific treatment planned and still on wait and see what the next tests reveal.

    A bit frustrating but thankful I feel OK.

  16. #60
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    Oct 2013
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    Hope they figure it out for you soon mate!

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