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  1. #1
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    Default Prostate cancer, i hope this helps.

    As the add on TV says " Prostate cancer " who's got it. Well i have, but fingers crossed i'm cured.
    Listening to the radio this morning i heard a well known presenter saying he was slowly getting back into the swing of things regarding work and so on.
    He had had his prostate removed.

    He said there is a saying which goes
    Please don't linger
    get the blood test
    have the finger.

    The blood test refered to is called a PSA, a simple process with the result a couple of days later
    and the finger really is nothing, why people make such a big deal about it is beyond me.

    My story starts about a year ago, i noticed i was having a small amount of blood in my urine.
    First thought was i had a chill on my kidneys or bladder. However it didn't clear up so i went to the docs.
    He arranged for me to see a urologist which i duly did and he said ok we will put a camera up through your penis and have a look at your bladder.
    Now, i do have monthly blood tests to monitor my warfarin levels and on my next blood test my doc said we might as well do a PSA at the same time.
    This came back with a reading of 18, not good, it should be under 6.

    My doc said to ring the urologist and tell him, and ask if he can do a prostate biopse at the same time of putting the camera up you know where.
    This was done and he said to ring in a fortnight for the result which turned out to be a definite yes for cancer.

    At this point i thought, should i tell my kids, they were both going through up heavels at the time, one moving house and the other splitting up her marriage.
    I decided not to tell them.


    Next he said i've arranged a bone scan for you, it's in a months time.
    I'm thinking, a bloody month, it's already been two weeks, what the hells going on. We've all heard the stories of
    people being diagnosed and popping off a few weeks later.
    Well it turns out that it's not like having the flu where every one is coughing and sneezing, with PC every ones different.
    Upshot was the bonescan showed that the cancer was still inside the prostate.
    He said if i had been older they wouldn't have done anything except to monitor it, but as i'm young (72 ) i'm worth saving.
    He arranged for me to go to the oncology dept at the Royal Adelaide. At this stage they said i should go on hormone therapy. !!!!
    Apparently it shrinks your prostate and so shrinks the cancer.
    The down side to this is no more erections. Bugga. You think this will be a big deal but then you realise it's better than the alternative and i readily accepted it.

    They did an MRI and after, inserted three gold seeds in my prostate, this then enables them to direct the radio therapy beam exactly where they want it.
    Treatment started two weeks later.

    Eight weeks five days a week, i had Christmas day and boxing day and New Years day off.
    I stayed with a friend in the city and and got to come home on three weekends.
    The cancer council have units in town for country folk if needed.

    The treatment it's self is easy peasy, lie on a bed and don't move till you're told. Takes about 10 minutes if that. 5 different shots. you feel nothing
    and the machine just moves round you until it's finished.
    It's the after effects that's the problem.
    Before the treatment you have to have an empty bowel and a nearly full bladder.
    All i wanted to do after was get to the loo as quickly as possible to empty my bladder.
    If i went to the shops i had to know where the loos where, cos when you've got to got you really have to go.
    Twice i didn't make it but luckily i was home alone both times.
    Then there's the diarrhea, they do give you tablets to relieve it and they really do work and i only had it twice in the eight weeks.
    with only one accident, again i was home alone which meant i wasn't embarrassed.

    Through out the treatment they keep asking you if you have any questions, your minds a blank until you walk out the door then you have lots.
    I would like to say at this point that i have nothing but praise for all the staff in the oncology dept at the Royal Adeliade Hospital.
    From the doctors down through reception, nurses radiologist to the volunteers who bring round a welcome cup of soup once a week.
    There bloods worth bottling.
    I found it odd but comforting that in the waiting room every one will talk to you, complete strangers happily telling you whats wrong with them.
    Where as in my own docs waiting room it's allways fairly quiet yet you know them all, by sight at least.
    I think it's because you're all there fighting the same thing in one form or another. It feels like a form of camaraderie.

    At the end of my last treatment i asked the attending doctor at what stage was i at now.
    He said they had aimed for a cure, that was why i had eight weeks and that only time would tell.
    I asked him do i have to stay on the hormone treatment, he said thats up to your urologist but i think maybe three months will be all.
    well three months later i had another PSA, this time the reading was 0.05. YEA, i was as happy as a pig in !!!!
    I saw the urologist and he said thats classed as a zero nearly everybody has a small reading. YEA again.
    I asked about the hormone treatment, he said oh that up to the hospital, they put you on it they can take you off it.
    I said but they told me that would be your decision. he said i'll write to them, ring me in a fortnight.
    Result was i have to stay on the hormone therapy for another year and as that old song went, hang down your head Tom Dooley. lol

    While i wasn't ecstatic i do readily accept it as again it's in my own best interests.
    What did tick me off though was that at this level of care i didn't think any body would be passing the buck, so to speak.

    So the purpose of this has been twofold. One, i think it's helping me a bit by talking about it as it's still not a certainty that i'm shot of it and
    to say that if you're diagnosed with prostate cancer it's not the end of the world

    BUT IT MIGHT BE IF YOU DON"T GET YOURS CHECKED

    . Any thing that happens to you is happening to the rest of us, you are not alone.

    BTW i did tell my kids when i started treatment, we caught up and went to dinner, they weren't happy but i was only trying to save them worrying.
    Cheers Fred



    The difference between light and hard is that you can sleep with the light on.
    http://www.redbubble.com/people/fredsmi ... t_creative"

    Updated 26 April 2010
    http://sites.google.com/site/pomfred/

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  3. #2
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    As a fellow prostate cancer survivor I'm glad to hear that it's working out okay for you.

    My cancer journey was a lot more involved then yours having had a radical prostectamy, then the 7 weeks daily radiation oncology treatment and three years of hormone depressant treatment. My PSA has now rising again to 0.1 and I'm on three monthly follow up supervision.

    Keep an eye on your bone density during the hormone treatment for the main concern can be getting osteoporosis as your testosterone level declines and your estrogen level rise.

    If you need further info or support or just want to chew the fat over the treatment with a fellow traveler send me a pm.

    Peter.

  4. #3
    Join Date
    Jul 2009
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    inverloch
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    Default

    Congratulation on your good results.

    "BUT IT MIGHT BE IF YOU DON"T GET YOURS CHECKED"​.

    From my experience I couldn't agree more and recommend everyone get regular PSA and digital tests. I had my first test at 62 and both tests checked out with the digital and a PSA of 2.9. I was feeling pretty good about it all so didn't have another test for almost three years. Big mistake! My PSA had gone up but only to 4.9 but the digital examination revealed some lumps. The interesting thing was that I had no symptoms at all but the the urologist recommended a biopsy.This showed a Gleeson score of 7 which apparently is the sign of a fairly aggressive cancer. Had I let it go much longer the result may not have been pretty.

    The lucky bit was that although the cancer was close to the margins it had not jumped. After a few days discussion with my wife I elected to have a radical prostatectomy by robot. It is now 3 1/2 years since the operation and my last PSA reading a couple of weeks ago was 0.017.

    So without wishing to be too melodramatic I would like to add another line of bold type in the hope that someone will benefit.

    PLEASE CONSIDER HAVING A DIGITAL AND A PSA TEST WITHN THE NEXT FEW WEEKS.

    Because there may be someone out there who is also showing no symptoms like me.

  5. #4
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    Default

    Thanks guys for the advice and offer of a chat.
    Cheers Fred



    The difference between light and hard is that you can sleep with the light on.
    http://www.redbubble.com/people/fredsmi ... t_creative"

    Updated 26 April 2010
    http://sites.google.com/site/pomfred/

  6. #5
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    Default

    Quote Originally Posted by fenderbelly View Post
    Thanks guys for the advice and offer of a chat.

    Only just got around to reading your post Fred and happy to see
    things are in your favour.

    Would just reinforce to all you guys, do not be embarrassed, just
    go and get everything checked. I had the operation a couple of
    years ago and still ask for a checkup, to be sure, to be sure.

    Allan
    Life is short ... smile while you still have teeth.

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