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Thread: Got a tough choice to make
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31st August 2012, 05:19 PM #1
Got a tough choice to make
This week I have seen the Orthopedic, Rheumatology and Eye specialists.
After 3 months on high doses of Prednisone, I can see better than I have been able to for years (chronic inflammation of optical nerve).
Orthopedist says if I don't get off these high doses my Osteoporosis will worsen and I can break bones any time. I fractured a vertebrae when I fell down the back steps.
Rheumatologist says he wants to try working something out with the other 2 specs and my GP.
Eye Specialist was jumping with joy when he found I could see again after being very close to legally blind.
He also said it was my choice:
Being able to see but have soft bones
or
being blind and have reasonable decent bones with no guarantees it will last.
I reckon I can get an electric wheelchair but I can't get electric eyes and I need my eyes more than I need my bones.
Am I wrong in choosing my eyes over my bones?
Is it going to be too tough wheeling around?
Cheers
WolffieEvery day is better than yesterday
Cheers
SAISAY
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31st August 2012, 05:27 PM #2
'tis a tough choice. I guess you have to see if the three of them can work out a happy medium with your GP.
anne-maria.
Tea Lady
(White with none)
Follow my little workshop/gallery on facebook. things of clay and wood.
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31st August 2012, 11:31 PM #3
Wow what a dilemma.
How's it going to be difficult wheelinround (Pun intended LOL) when your using an electric chair? Just make sure you have a long extension lead.
Wolfie firstly is the house suitable in all aspects. Entry, exit, door ways, amenities, utilities, kitchen.
Now whats to become of the shed and all the equipment you just bought?
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1st September 2012, 07:39 AM #4
Hi Wheelie
The new house we built is all open plan, only 4 doors in the house for the private places.
The house is about 1 metre off the ground but room to build a ramp. The shed will be accessible via a deck built between the shed and the house, the sloping ground between them means the deck will only have one step down.
Regarding all the new stuff, I guess that's why I believe my eyes are the most important ability to keep.
How do you manage to use the machinery from the chair?
Until the money becomes available, I guess I will be using just a normal wheeling-around-chair.
I am having an annual infusion to delay the deterioration of the softening of the bones.
Well, I guess I shall just have to take it as it comes and in the meantime make the most of what I can do
Cheers
WolffieEvery day is better than yesterday
Cheers
SAISAY
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2nd September 2012, 10:07 AM #5
Wolfie house and shed set up sounds great
I don't work from the wheelchair much I can do a short stand as legs sort of work. I use a draftsmans gas lift stool which I scored through Snowyskiesau/Geoff some time back I changed the castors to decent hard wearing with 3 having breaks or being lockable if I need them. Only problem I have with this situation is I can't raise the gas lift while on it or stand and raise it, either Sue has to be there while I stand or I sit back in the wheelchair and then get back up on it.
The castors on the stool allow me freedom to roll around my small garage/workshop set up.
I scare the crap out of most who see me do it when I lean down from my perch to pick up something I have dropped. Yes I have a magnet pick up doesn't work on wood, brass, sand paper or ali.
Yes I have one of those grip pick up things too, usually at the opposite end to where I am at and again has its limits.
Hope you soon settled and back in the swing.
Now thats an idea I have had since I used to spray buses and coaches when I was able to climb etc a gantry track skyhook type. Just like they have used in the opening of the Para-Olympics
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5th April 2022, 12:13 PM #6Senior Member
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Wolfie, I am so sad to read abut your difficult choice and wish you all the best.
While you are considering your dilemma don't overlook other considerations that may make your choice clearer, but not necessarily easier.
Not to cause you more anguish, but don't overlook Steroid Dementia when considering your options concerning long-term steroid use. Talk that over with your specialists but do your own research first so you're equipped with knowledge and questions if it's brushed aside.
I have no personal experience but my sister has just come off long-term steroid use, originally prescribed for fibromyalgia. She experienced cognitive decline among other serious physical problems and depression. We're hoping she will regain her former capacities. Unfortunately we're half a world apart, and have been for many years, so I was not aware of the extent to which she'd deteriorated.
She has now been diagnosed with Steroid-induced Myalgia on top of the depression caused by the cognitive and physical decline.
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5th April 2022, 01:24 PM #7.
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Cleokitty you my want to check when the posts you responded to were posted (2012) and Saisay hasn't been on teh forum since 2016.
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5th April 2022, 02:57 PM #8Senior Member
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