Well I finally got the verdict
The verdict is that all the medicos haven't got a clue what is wrong with me, they call me a conundrum.
One thing I do know is that I do not have MS.
I haven't got any inflammatory markers but for some unknown reason, if they cut down on the prednisone my vision goes down dramatically.
My eye specialist has no idea why the prednisone works but as long as it works, he is happy.
I love that man, he is one of the few specialists who has never forgotten that it is a person he is seeing, not an illness or a symptom. I get rather testy when they stand around and discuss me as if I have suddenly gone invisible.
The other doctors are unhappy because the dose is too high for long term use. I ended up telling them that you can put my body in a wheelchair but you cannot do that to my eyes and what's the good of being able to walk around if I cannot see where I am going? They didn't answer that one.
I went for a nerve conduction test. They tested my legs but I don't get that result until I see the neurologist on 16 January, in the meantime I just have to live with the loss of sensation and pins and needles in my legs.
They refused to test my arms because "they did 2 tests 5 years ago and they know what's wrong with me". Pity they never told me, all they told me was not to lean on my elbow when I sit at my desk.
Apparently the 2 injuries I have had to my left shoulder and the fall down the steps, the fractured vertebrae, the trapped nerve and the bulging disks in the last 12 months are irrelevant and there is no reason why my neck and face has gone numb. Well that's according to the "doctor" who did the testing, he told me "that's clinical and has nothing to do with this testing."
I have written myself a long letter setting down all the questions I have to ask the neurologist in January.
woodworkers with disabilities.
Hello Saisay,
I am not a MD, but I had similar symptons, with resulted in a diagnosis of poly myalgia rheumatica and giant cell arteritis.
The treatment for the giant cell arteritis was prednisone (& the PMR) . GCA affects the eyes and can cause blindness unless treated.
The (2) blood markers for inflammation of this nature are CRP (C-reactive protein) and ESR (E sedimentation rate). I just mention all this to
you in case it can be helpful and that you might wish to take these aspects up with the medicos. Take care, John M.