Thread: Peripheral Neuropathy

Not good news mate. I don't know the illness, but hopefully they have something to get it until control and stop the spread.

All the best.

My wife has it quite badly and I can only have empathy for anyone with it. Sadly, treatments work for some but are ineffectual for others (my good wife)

Artme, I hope you can get the treatment you need,

Kind regards,

Chipman

Hope they find something that helps.

Thanks all!

I had best get into the woodheap before thing do get worse!

Arthur welcome to the club my main disability is called Charcot Marie Tooth do a search you'll find some interesting info. I am not main steam and the good news is recently the gene DNA has been found which has the fault.

Hope you are one of the lucky ones that the treatments avalliable will work for you artme.
Sorry that there isnt much treatments for your CMT wheelinround.

Haveing had half of my foot amputated from an industrial accident and all the problems that I am experiancing walking again can sympetsise your two problems.

The positive attituded that wheelinround has is an insparation and you will get on top of your problem artme im sure.

Regards,
Keith.

Unfortunately, peripheral neuropathy isn't a disease of its own; more like a family of symptoms which can vary all over the lot. I've been told by my neurologist that there can be up to 150 real diseases. Most commonly, diabetes is an influence, so get checked for that at least. (Absent for me).

Mine (many years now) manifests itself with a burning sensation in the feet, typically after strenuous yard work, sometimes not. Numbness would be a great relief. There are some topical treatments based on capsaicin, the hot stuff in chili peppers; I take mine internally from jalapeno peppers. I don't know if it helps, but it gives my gut a workout.

Google isn't much of a friend for this one - too many possibilities.

According to Hippocrates, the physician's mission is to amuse the patient while Nature cures the disease. Laughter really is pretty good medicine.

Patient: "Doctor, it hurts when I do this!"
Doctor: "Well, don't do that!"

Cheers,
Joe

Yes, the specialist told me that there is no singular cause for the problem and more often than not no cause is found. My blood sugar level is fine,so that is one thing ruled out.

I originally thought that this sensation was caused by lower back problems. I have Ankylosing spondylitis , stenosis and some disc problems. My back is giving me curry at the moment but it is not the cause of the problem in the feet. Just one of those wait and see things that afflict us from time to time.

Originally Posted by Keith_W

Hope you are one of the lucky ones that the treatments avalliable will work for you artme.
Sorry that there isnt much treatments for your CMT wheelinround.

Haveing had half of my foot amputated from an industrial accident and all the problems that I am experiancing walking again can sympetsise your two problems.

The positive attituded that wheelinround has is an insparation and you will get on top of your problem artme im sure.

Regards,
Keith.

Thanks Keith

Oatly I used to live over the hill Mortdale dad worked at what was Mortdale Bolwing club I went to Mortdale Primary one near the brick pit.

Sorry to hear you are having problems Arthur and hope the specialist can fix you up pretty quick. When you got to see the specialist?

Originally Posted by artme

Been having trouble with numbness in the feet for several months now. It started out with just the toes but now, at times, it goes all the way to just above the ankles.

It isn't bad, feels like a very tight sock. However I do some times stumble after getting up in the morning, when the effects are worse. I don't really know where my feet are!

Specialist has sent me off to another specialist - neurologist.- to see what can be done. Apparently there is some treatment available.

My only hope is that it doesn't start in my hands. I guess time will tell.

I have numbness in both feet for a several years , seen a specialist about 4 years ago , had all the tests , couldn't come up with any positive cause, have blood tests every few months , checking everything.
I had bad back problems about 30 years ago, and lost feeling down the side of my ankle, over the years it progressed to both feet.
Stood on a nail about 3 years ago in the workshop, didn,t know until I took my shoe off about 4 hours later ,sock covered in blood.
With it I have bad circulation in both legs, I don't fly anymore , driving I have a break every hour or two.
regards John.

Not good NF. I certainly hope it doesn't get any worse for you.

I must agree that Wheelin is an inspiration. What a great pity that there seems to be nothing that can be done for CMT at the moment.

I see the next specialist in about a month. One thing about what I have- or seem to have - is that under certain circumstances it may be controlled to some extent. From what the specialist said the other day my problem is not caused by my lower back problem. He was very thorough and specific with his questioning,.so I don't think there is any doubt about what I have.

The next specialist may have more definitive ansewers as to possible causes and possible treatments.

Arthur, not so nice, hope you meet soon the right specialist who can really tells you what's wrong.
My wife has rheumatic for a long time, had several specialist in several hospitals, untill she found the right rheuma specialist. He give her now the right treatment she need.
Sometimes you have to push a specialist to get his attention. That's exactly what she did.
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Also consider acupuncture.

There are some doctors who've qualified in it so there's a Medicare rebate.

I had it in Hong Kong years ago, and more recently in Melbourne, for a digestion problem that doctors couldn't diagnose; the effects were miraculous and also fairly short lived, but it helped me get a grip on the problem.